RARE DISEASE HONG KONG

Survey on Treatment Needs and Quality of Life of XLH Patients

Rare Disease Public Education Programme ~ Column in the Health Section of Oriental Daily News

Human Library for Primary & Secondary Schools

Pilot Scheme of Subsidy for Healthcare Needs

Members' Corner - Contributions from members are welcome!

List of Drugs for Rare Diseases in Hong Kong

List of Drugs for Rare Cancers in Hong Kong

RDHK Approaching the 10th Anniversary

"Knowing ILD" webpage

Genetic Counselling Service Support Programme for Fabry & Pompe

Latest EventsView all >>

The LUPUS Revolution 日期：4th May 2024 (Sat) 時間：15:15 - 16:15 地點：The Women's Lounge in Central
「香港杜興氏肌肉營養不良症協會」成立典禮暨講座日期：2024年4月27日（星期六）時間：下午2時30分至5時地點：觀塘海濱道135號宏基資本大廈7樓
SMA病友🐉龍的約會日期：2024年3月23日（星期六）時間：下午3時至6時地點：九龍塘達之路78號生產力大樓1樓演講廳二

Latest NewsView all >>

List of Drugs for Rare Diseases in Hong Kong 2024-04-18 Reference List for rare diseases drugs in Hong Kong（v202404）.
List of Drugs for Rare Cancers in HK 2024-02-16 List of Drugs for Rare Cancers in HK（v202402）.
好「磷」社 XLH病人治療需要及生活質素調查計劃 2024-02-04 誠邀XLH患者和照顧者參與問卷調查。

Event ArchivesView all >>

Community InformationView all >>

【🎶心光恩望音樂之旅🎶】 2024-03-31 活動推介踏入初夏，大家有什麼好節目呢?喜歡音樂的朋友，可考慮參加這個由心光恩望學校舉辦的「心光恩望音樂之旅」
Support Programme for Employees with Disabilities 2024-02-26 Employment support Everyone has their own talents. Even people with disabilities can join the workplace and contribute to society as long as they are provided with appropriate supporting platforms.
《認識肺纖維化》專題網頁 2024-02-17 Dedicated webpage 為提升大眾對肺纖維化疾病的認識，罕盟特地推出相關專題網頁，並不時作出更新。