Tel.: (852) 2708 9363 Email:
Rm 101, Lai Huen House, Lai Kok Estate, Cheung Sha Wan, Kowloon
The Position Paper prepared by HKARD has been jointly endorsed by:

Hong Kong Alliance for Rare Diseases

(in alphabetic order of organisation name/surname)

Hong Kong Alliance of Patients’ Organization
Hong Kong Association of Squint and Double Vision Sufferers
Hong Kong Credible Care Volunteers Association Limited
Hong Kong Marfan Syndrome Association
Hong Kong Mucopolysaccharidoses & Rare Genetic Diseases Mutual Aid Group
Hong Kong Neuro-muscular Disease Association
Hong Kong Paediatric Rheumatism Association
Hong Kong Rare Disease Concern Group
Hong Kong Red Cross John F. Kennedy Centre Alumni Association
Hong Kong Spinocerebellar Ataxia Association
Joshua Hellmann Foundation for Orphan Disease
Little People of Hong Kong
Retina Hong Kong
Sudden Arrhythmia Death Syndromes Foundation
The Hong Kong Society for Rehabilitation
Mr. Ronald Chow – parent of a patient a diagnosed of Tuberous Sclerous Complex
Mr. Patrick Fuk Wu Chan – a diagnosed Myelofibrosis patient
Ms. Maria Wong – a diagnosed Myathenia Gravis patient.

(Updated on December 10, 2014)

Welcome to endorse our Position Paper, please contact:

Hong Kong Alliance for Rare Diseases
Address:G/F, Wang Lai House, Wang Tau Hom Estate, Kowloon