Tel.: (852) 2708 9363 Email: info@hkard.org
Rm 101, Lai Huen House, Lai Kok Estate, Cheung Sha Wan, Kowloon
Our Objectives
  • Enhance understanding of rare diseases among patients, carers and their families; promote self-help and mutual support and positive attitude, towards leading a more fulfilling life.
  • Promote public education on rare diseases, strengthen community awareness, understanding and support for patients, their families and related self-help organisations.
  • Ensure rare disease patients and their families’ needs and views are represented via policy advocacy and dialogues with Government authorities; leading to the formulation of proper support policies and services to address their needs in medical care, rehabilitation, education, welfare and social participation.
  • Support and assist in rare disease-related research study.
  • Unite rare disease patients, families, self-help organisations, healthcare professionals and academia, media and other stakeholders, promote collaboration and exchange.
  • Promote dialogues, consultation and collaboration among related rare disease organisations in Hong Kong, Mainland China and overseas.